He Can Read Again!



Some personal stories are meant to be shared in a blog because other people need the information. I think this is one of them.

My husband has a vision condition similar to macular degeneration. He has been affected by this for 10 years now. With this condition, as with macular degeneration, he has lost the central portion of his vision. He has been unable to read from printed material for about 5 years. It is difficult for him to see faces or specific details. He is still able to see the "big picture" because his peripheral vision is fine.

There have been wonderful advantages to computer technology that he has been utilizing. Microsoft Word and most other computer programs have low vision adjustments that can be made to accommodate people's needs. Words can be magnified, contrast can be changed, and some programs will read out loud. He has discovered books on CD which are abundant through our library system.

However, picking up a book or magazine and reading it has been almost impossible.

He has been under the care of a retina specialist who has our full respect. Recently though, another opthamologist mentioned to us that we should not see the same specialist for 10 years without input from another doctor. Well, believe it or not that is exactly what we had done.

So we were off to a new specialist at Dean McGee in Oklahoma City. This doctor confirmed everything we have been told in the past. The difference is that he referred us to a LOW VISION REHABILITATION SPECIALIST. Ever heard of that? She assessed his vision in more practical ways than just reading eye charts. This was the first time that we felt someone was actually measuring his difficulty level and understanding the struggle.

We were then referred on to an Occupational Therapist who specializes in low vision rehabilitation. She fitted Paul with Prismatic Reading Glasses and a prescription strength magnifier. After all this time, he can again read books and magazines. It's not easy and all vanity has to be put aside - BUT HE CAN READ!!

We still have great respect for the doctor that he had been seeing for years. The difference is that the new doctor cares about how this condition has changed things for Paul. He sent us in a direction that has made a huge impact on quality of life.

I share this with you because we learned so much from this experience and because macular degeneration is prevalent. It will affect many people in their lifetime. Paul's problem is really a little different but the results are the same.

Here is a link for information http://www.nei.nih.gov/health/maculardegen/armd_facts.asp

8 comments

dana said...

It is just a blessing to find such a wonderful doc. who takes the real life approach to dealing with your hubby's condition. The OT has already, it sounds like, opened wonderful new doors for him. Thank you for sharing that great story!
I saw you are a transfer ware lover. I have just recently fallen in love with it.
It was so great to visit your blog. Dana

southerninspiration said...

Thanks for visiting my blog and leaving a comment. What a great story and what great news for ya'll! I'm sure it is life altering. oh, btw, i LOVE transferware, too!!!

Picket said...

What a beautiful post..Oh I am so happy for you and your hubby...I could not imagine how it would feel to not be able to read...it must have been very emotional for the two of you the first time he actually pick up something to read and could see it...oh that is glorious...thanks for sharing such a beautiful story...have a great weekend!

Nancy said...

What wonderful news and what a blessing! I am happy for you both! Nancy

Erin~Old Grain Sacks and Lavender said...

What an amazing story! I'm so happy that you were able to find this wonderful doctor! What a blessing for your husband to be able to pick up a book or magazine and read it again!

Blessings and hugs to you,
Erin

Susie Harris said...

Thanks for this info. My dad has the beginning stage of this. It's kind of scary.. your sight is such a precious gift. I will pass this on to my dad. Thanks again and I pray that your sweetie does great!

Chari said...

Hello!

Just wanted to stop by to say thank you for visiting my little red "frenchy" dining room and Autumn tablescape...sure appreciated all of your sweet compliments!

Well...this is my first time to visit your blog and I'm so happy that I stopped by! I really appreciate reading about you and your husbands journey through some difficulties...and so happy to hear that the new Occupational Dr. was able to help your husband with the Prismatic reading glasses! That's awesome!!! I send my best to you and Paul for continued progress!

Warmest wishes...Chari (Happytodesign)

Anonymous said...

Enjoy your blog. My husband's mom has this. So when he noticed the change in his eyesight he went pronto to the eye Dr.. He has been getting the shots in his eyes for a few years now and it has kept it at bay. Only wish his mom would have went to the eye Dr. when she first noticed the cloudy black spot. These shots are very expensive and are thankful for our good insurance.